Patient reported outcomes (PRO) are reports coming directly from patients about how they feel in relation to a health condition and its treatment. PROs are particularly valuable to health research and innovation as they are exclusively obtained from the patient and contain unique information. PROs are typically measured when a patient has left hospital and may contain information about symptoms that is not obvious to an observer. This could include fatigue, headaches, sleep disturbances and psychological symptoms such as depression and anxiety. Understanding what impacts a patient’s daily life can inform a tailored program for managing their illness.
Monash Department of Epidemiology and Preventive Medicine DEPM is a national leader in measuring the quality of hospital based care. One of the major challenges in this area is the systematic measurement of treatment outcomes. This project focuses on the improvement of outcome measurement within clinical quality registries. It will further develop the approaches to collecting patient reported outcomes and integrating them with other clinical outcomes to provide comprehensive measures of excellence in care delivery. The project aims to improve the efficiency of this aspect of data collection and develop new and better ways to report results to clinicians, patients and funders.